61- Embracing Fibromyalgia and Chronic Fatigue Syndrome
I feel like I’m losing myself. I can no longer do what I was
able to do just a month ago. My whole life is changing since I’m unable to do
what I usually do. I am so slow with everything, and everything is painful, so
I have to take a whole lot of breaks. This is not how I expected my life to be
at this age (39yrs on June 30). In fact, I had goals to hit at 40 that I don’t
think are attainable with my ‘disability’.
My goals were to secure and enjoy my future with the things
I like doing. I wanted to play piano and sing on a regular basis at a
restaurant on the lakefront. It has been a dream of mine for more than 10
years. I was just getting ‘there’, I had a whole set of songs I had been
practicing daily the past few years, and I absolutely LOVED playing and
singing. I’ve had only a few gigs with the band I was in (11 yrs ago) because
it was too difficult to get every member to practice our set as often as needed
to play publicly. That’s why I decided to learn to play and sing at the same
time so I wouldn’t be dependent on other people to play my music.
Just about 3yrs ago I performed three songs, one that I
wrote and two cover songs, at a local pub called “Green Room”. My husband
performed his own music on the keys. The crowd of people dancing to my music
made me feel as one with them as they enjoyed my favorite songs as much as I
do! I loved the rush of excitement I’d
get from the audience as we all enjoyed the music together. And I loved how the
audience enjoyed my husband’s songs too. I thought he sounded pretty awesome!
We got so many compliments that night I’m sure it stretched our egos a bit,
which I guess I was craving.
Craving reassurance that I can do something, at least one
thing, really well.
I admit I also was going for a “six pack” and a lean, fit
body. I was getting there too! I was seeing muscles I hadn’t noticed before,
feeling a whole lot stronger, getting all kinds of work done in the yard and
house. I do prefer the way my body looks when I am strong and lean. Now that
these goals don’t seem attainable in my condition, I feel even more dependent
on others to care for me, the one who “can’t do anything anymore”, and that
frightens me.
I realize now that I’m ill, that taking ultimate care of
myself is more important than pleasing others or looking good. I can now only
wear a specific type of shoe, and I am a shoe enthusiast so I’ll be trying to
sell a lot of shoes. I can no longer play piano or guitar and sing more than a
half a song at a time. I can no longer work in the yard, sometimes I can’t type
more than a couple of minutes at a time. I’m having a hard time letting go of
all these things I enjoyed doing. If I were to judge having fibromyalgia as
‘bad’ because of all these things I’m loosing, I can also judge this chronic
illness as ‘good’ because I’m gaining insight into how to take better care of
myself and my children, and I’m in this for good since this is a chronic
illness. If I slip up and eat ice cream or pizza, I suffer. If I drink a beer
or a glass of wine during a celebration, I suffer. So I have fibromyalgia to
motivate me to stay ‘clean’.
SELF-FORGIVENESS STATEMENTS
I forgive myself for accepting and allowing myself to
believe I am loosing my self as I am loosing my abilities with my body.
I forgive myself for accepting and allowing myself to
believe I can lose myself, when no matter what I can or can’t do with my body,
I am still here.
I forgive myself
that I’ve accepted and allowed myself to state myself as “the one who can’t do
anything anymore”.
I forgive myself that I’ve accepted and allowed myself to
desire the energy, the rush of excitement I feel while performing for a crowd
of people dancing to the music
I sing and play the piano or guitar.
I forgive myself for accepting and allowing myself to search
for approval from others.
I forgive myself for not accepting and allowing myself to
seek within myself to find approval, to see what it is I am not approving of
myself.
I forgive myself for accepting and allowing myself to think
I cannot write anymore
because of pain and muscle fatigue, instead of realizing
that I can still write on some days, I just have to take a lot of breaks and a
lot more time.
I forgive myself for accepting and allowing myself to
believe that I have to write the same amount or as quickly as I did before my
disability flared up.
I forgive myself that I’ve accepted and allowed myself to
believe I cannot afford a dictation-to –text software program and thus I
forgive myself for accepting and allowing myself to ‘give up’ on this possible
solution to ‘writing at a decent speed’.
I forgive myself for accepting and allowing myself to
believe that I have to ‘keep up with everyone’.
I forgive myself for accepting and allowing myself to
compare myself to others.
I forgive myself that I’ve accepted and allowed myself to
place judgment that I’m “weak and disabled”, by comparing myself to others as
‘strong and able’.
I forgive myself for accepting and allowing myself to feel
as though I have to be able to do ‘normal things’ like other people are able to
do.
I forgive myself for accepting and allowing myself to
project into the future a ‘future me’, as ‘an elderly lady who is fit and
healthy, and able to walk fast’.
I forgive myself for accepting and allowing myself to
project into the future how ‘fit and healthy’ my body would be at this age.
I forgive myself for accepting and allowing myself to hold
expectations of what my body should be like at this age.
I forgive myself for accepting and allowing myself to become
disappointed with the real outcome, because it is not at all how I had planned
it to be.
I forgive myself for accepting and allowing myself to become
frustrated with my body not working the way I expect ‘it should’.
I forgive myself for accepting and allowing myself to resist
my changed capabilities and lifestyle.
I forgive myself for accepting and allowing myself to judge
my old lifestyle as “better”.
I forgive myself for accepting and allowing myself to
believe in my judgment, when it is not factual reality, but just a mere thought
perception, a mind comparison and judgment of what was before to what is now.
I forgive myself for accepting and allowing myself to think,
“Life sucks!”
I forgive myself that I’ve accepted and allowed myself to
judge life as something ‘bad’ because I realize that I am only placing myself
within the mind, not reality and as I’m in the mind, I am choosing how I want
to judge life.
I forgive myself for accepting and allowing myself to react
in the emotion of sadness to the thought, “life sucks!”
I forgive myself that I’ve accepted and allowed myself to
focus on all the things that I don’t have, instead of realizing the things I do
have, such as healthy children and a supportive husband, and beyond that,
realizing I have myself, I am still here, and I have ability to take action and
make a change in this world for the better.
I forgive myself for accepting and allowing myself to eat
certain foods (such as frozen pizza and ice cream) that knew were unhealthy for
me.
I forgive myself for accepting and allowing myself to think,
“I’m so stupid for not taking well-enough care of myself and now I’m suffering
for it”- because I realize that I didn’t know what was going on within my body,
at the time, and I didn’t know my body can’t handle certain foods and
allergens, or too much physical activity.
I forgive myself that I’ve accepted and allowed ‘pain and
fatigue’ as a trigger to the thought “I’m so stupid for not taking well enough
care of myself and now I’m suffering for it”.
I forgive myself for accepting and allowing myself to react
in anger to the thought ‘I’m so stupid for not taking well-enough care of
myself, and now I’m suffering for it’.
I forgive myself that I’ve accepted and allowed myself to
wait for a diagnosis of Fibromyalgia and chronic fatigue syndrome to motivate
me to take better care of myself.
I forgive myself for accepting and allowing myself to exert
anger toward Fibromyalgia and Chronic Fatigue Syndrome.
I forgive myself for accepting and allowing myself to
participate in anger.
I forgive myself that I’ve accepted and allowed anger as who
I am.
I forgive myself for accepting and allowing, myself to want
to ‘give up’, because everything is so much more difficult and painful.
I forgive myself for accepting and allowing myself to ‘freak
out’ and cry about having this illness and disability.
I forgive myself for accepting and allowing myself to feel
shame from ‘freaking out’ and crying.
I forgive myself for accepting and allowing myself to judge
self as weak and disabled.
I forgive myself for accepting and allowing myself to feel
sorry for myself.
I forgive myself for accepting and allowing myself to think,
“I can’t do anything anymore”.
I forgive myself for accepting and allowing myself to react
in self-pity to the thought, “I can’t do anything anymore”.
I forgive myself for accepting and allowing myself to exert
anger towards people who don’t ‘believe that Fibromyalgia is a real illness.
I forgive myself for accepting and allowing myself to give
up on writing because of the pain, fatigue, headaches and dizziness, instead of
taking it one step at a time, and finding a new yet slower way to do things.
I forgive myself for accepting and allowing myself to place
a negative charge to the word ‘slow’.
I forgive myself for accepting and allowing myself to view
‘slow’ as bad/unproductive, and ‘fast’ as good/productive.
I forgive myself that I’ve accepted and allowed myself to
judge myself as weak.
I forgive myself that I’ve accepted and allowed myself to
place a negative charge to the word ‘weak’ and a positive charge to the word
‘strong.
I forgive myself for accepting and allowing myself to desire
my old (faster, longer, stronger) capabilities.
I forgive myself for accepting and allowing myself fear
losing even more capabilities.
I forgive myself for accepting and allowing myself fear
being confined to a wheelchair.
I forgive myself for accepting and allowing myself to
connect being confined to a wheelchair to fear and thus, I forgive myself for
accepting and allowing myself to fear my own fear.
I forgive myself for accepting and allowing myself to fear
the judgments people could make of me as they notice how I walk and do things
differently.
I forgive myself for accepting and allowing myself to place
such importance into what other people think of me because I realize that I
don’t have to participate in these thoughts of what others may think. I need to
instead be focused on what it is I am not disciplining myself with that is
causing me to search for outside approval.
I forgive myself for accepting and allowing myself to search
for outside approval
Instead of investigating self to see what thoughts self is
having friction with and applying self-forgiveness and self-corrective
statements.
I forgive myself for accepting and allowing myself to be
frustrated with having to take so many breaks from the things I do, (like
writing) do to my lack of certain muscle abilities.
I forgive myself for accepting and allowing myself to fear
never being able to play piano again.
I forgive myself for accepting and allowing myself to
connect not being able to play piano again to fear and thus I forgive myself
for accepting and allowing myself to fear my own fear.
I forgive myself for accepting and allowing myself to fear
my husband leaving me because of my condition and how much more he has to help
out now.
I forgive myself for accepting and allowing myself to
connect my husband leaving me to fear and thus I forgive myself for accepting
and allowing myself to fear my own fear.
I forgive myself for accepting and allowing myself to become
dependent on my relationship with my husband.
I forgive myself for accepting and allowing myself to fear
getting fat because of my disability and slow metabolism.
I forgive myself for accepting and allowing myself to
connect getting fat to fear and thus I forgive myself for accepting and
allowing myself to fear my own fear.
I forgive myself for accepting and allowing myself to place
a negative charge to the word ‘fat’.
I forgive myself for accepting and allowing myself to think
if I get ‘fat’, I will be less desire-able to my husband and less ‘like-able’
to the general public because I realize that I still desire my husband when he
puts on a few pounds, and I’m comfortable with other overweight people, so why
would I want to go and follow a thought like that!
I forgive myself for accepting and allowing myself to think
‘all the things I am no longer able to do’.
I forgive myself for accepting and allowing the symptoms of
fibro (pain, fatigue and increased sensitivity to all senses, and migraines) to
the thought, ‘all the things I’m no longer able to do’.
I forgive myself that I’ve accepted and allowed myself react
in depression to the thought, ‘all the things I’m no longer able to do’.
I forgive myself for accepting and allowing myself to define
myself as ‘depressed’ instead of realizing I have the capability to do things
that I can do still and It is my decision whether or not I take action.
I forgive myself that I’ve accepted and allowed myself to
think, “I’m going to be so bored for the rest of my life not being able to use
my body the way I want”.
I forgive myself for accepting and allowing myself to react
in the emotion of sadness to the thought, “I’m going to be so bored for the
rest of my life not being able to use my body the way I want”.
SELF-CORRECTIVE STATEMENTS
When and as I begin to fear losing myself I stop, I breathe.
I realize that I am not only my body, and that the ability I have over my body
does not dictate my existence. I will lose my body completely one day anyway
and that is something that I am going to have to face. In the moment, I’m just
facing partial loss, and grieving my “old self”. I continue to ‘grow’ as I face
fears and challenges, gain insight into who I am, the things I can do, and
accept self without these abilities.
When and as I fear my husband leaving me because he has to
help out so much more now with my disability, I stop, I breathe. I realize that
I am grasping on to my partner as if I couldn’t make it on my own, and this is
a fear I have made up in my head through thinking of all the worst case
scenarios. I realize that my thoughts are only that, not reality, and although
it is good to be prepared in any situation that may change, it doesn’t do any
good to dwell and worry. I also realize that I have come through many
difficulties and changes that I had previously thought I couldn’t handle alone,
but I got through all those times and I came out knowing I could face that
situation again.
When and as I begin to compare my physical abilities to
others physical abilities and become frustrated with my body, I stop I breathe.
I realize that this comparison stems from a standpoint of self pity, which is
in and of the mind only, not a reality, which gets me nowhere, as it only keeps
me depressed and in my head. I also realize that by comparing myself to others
I am separating myself from them, and placing physical abilities as top
priority, but we are of the same substance underneath these physical abilities.
When and as I dwell in the past, in what I used to be able
to do, I stop, I breathe. I realize that I’m allowing myself to not live in the
moment when I’m in my mind in the past. I have the ability to live here, now in
this moment in this physical body, so why stay in my mind, comparing my old
life to my present one, when all that does is not allow me to live in the
present?
When and as I feel sad and depressed, I stop, I breathe. I
realize that sometimes life is hard, but I get through it when I take action. I
don’t need to stay in my thoughts, I need to
take action and live.
When and as I feel sad, disabled, and bored because I can’t
do the things I used to enjoy, I stop, I breathe. I realize that boredom is only
judgment in the mind as it craves excitement, and I don’t need to place myself
in those thoughts and desires, I just need to take a look within myself, write,
or dictate (if I get one of those ‘dictation software programs’), and see why I
am craving excitement. It stems from an unfulfilled feeling within me, and I
can’t fix that with outside stimulation. I can find it only within me as I
learn to trust self completely by being self honest and disciplined.
I commit myself to continue on with my life, writing,
raising kids, doing what I can do, living in reality, in the present moment,
not dreaming of the things I used to be able to do, but adjusting to my altered
capabilities, without comparison and judgment. I commit myself to focus on
self-honesty instead for searching for outside approval.